Tuesday, June 23, 2009
Why we are using the MCT oil/Coconut oil mixture
Most of the time now Steve is getting just over 2 tablespoons of a mixture of MCT oil and coconut oil, three times a day, but we also use coconut oil to cook in and sometimes use coconut milk or grated coconut, and depending on how much is in the food, I may subtract a little from the mixture that he takes at that meal. This is not cut in stone. It is just what we arrived at after a lot of experimentation. We found out what the limits of his tolerance were for the oils and when we reached the point that he was having some diarrhea we cut back. Many people cannot handle as much of this as Steve can, so each person will to find their own limit. We push it to the limit to try to maximize how much ketone he will receive - the more medium chain triglyceride in his diet, the more ketones he should have available for his brain. That is how I look at it.
Monday, June 22, 2009
Curry and Alzheimer's disease
Emulsification of coconut oil/MCT oil
I want to share something I just learned about a way to make coconut oil blend in easier to certain foods. "Emulsification" of an oil does a couple of things, 1. makes it mixable with foods that contain water, 2. makes the oil particles much smaller so that more is absorbed and potentially higher ketone levels could occur. I want to thank Marjie, who is in the restaurant business, and told me that the addition of "lethicin" to the CO and/or MCT oil will emulsify it. So I bought some liquid soy lethicin at the local health food store that she recommended (Fearn brand for about $11 per quart) and have been experimenting a bit. It is very thick. I overdid it the first couple of times, but found that 1/4 teaspoon in about 8 ounces of the oils seems to do the trick. We add it to yogurt or kefir (liquid yogurt) and it mixes in much better with than without the lethicin. I plan to try it today with coffee, etc. There are many more ways that this could make a difference and easier for people to use this, such as orange juice, tea, coffee, smoothies, salad dressings and might not layer out on things like oatmeal so much. I plan to add it to plain old coconut oil also to see if it make its liquid at a lower temperature. Will get back to this after some experimentation over the next few days.
Friday, June 19, 2009
Getting the Message Out - Any help is greatly appreciated!
Any help with getting this message out is very much appreciated. You never know who may come across it and then may experience a life changing event for the better. That is why I spend so much time at this and also carry copies of my article and diet guidelines in our car. Hearing about a response like my husband's really makes my day and makes me feel like the effort is worthwhile. I have heard back from and read about very many who have had improvements, some dramatic.
Steve and I make the circuit of the local health food and Asian stores every couple of weeks and they make copies available to their customers. This is how I started getting the message out when I couldn't get people in the media and the Alz Assoc to investigate this and tell people. I tried to get their attention very intensely for the first six weeks after Steve had his dramatic response and still do, but decided after their lack of response that at the very least, I had to go with the grass roots method to tell as many as possible. I could not live with myself, knowing how many could be helped, if I did not try to share this with other people. I suspect that the high profile people I have written to either haven't gotten or grasped the message, or just believe it is too easy to be real and toss it aside. The very long list includes Oprah (many times), Dr. Oz, Michael J. Fox (this may help with Parkinson's as well,) Maria Shriver (who we talked with personally in Washington DC and handed her a copy of my article and several related research papers,) Sandra Day O'Connor, Ellen Degeneres, Jenny McCarthy, David Hyde Pierce, Elizabeth Hasselbach from The View, several different people from the Today Show, many politicians, including Hillary Clinton and Obama,) all of the major nightly news channels, CNN, USA Today and many other newspapers, the producers of the HBO Alzheimer's Project (in person in D.C.)
I do want to mention that the regional newspaper, the St. Petersburg Times, did write up a story about what happened with Steve, and getting the message out grew by leaps and bounds thereafter, so I am very grateful to the editors and the author, Eve Hosley-Moore, for publishing the story last October 29, 2008. It was also then picked up by many groups who have published the information in their newsletters.
Also, to anyone out there who has seen an improvement, it would be very helpful and important to share your story with Dr. Veech to get the funding he needs to study his ketone in Alzheimer's disease. You can either email me details at firstname.lastname@example.org or directly to Dr. Richard Veech at email@example.com. His email address and other contact information can also be found under the heading of "ketones" in Wikipedia, for anyone who wants to verify his expertise. There are also copies of several of his articles on ketones available to print out on my website www.coconutketones.com.
APOE4 and medium chain triglycerides
Axona has only one of the medium chain triglycerides (C:8) but coconut oil has C:6, C:8, C:10, C:12 (all medium chain triglycerides) and five other fatty acids, including some monounsaturated and polyunsaturated fatty acids, including the essential fatty acid omega-6 (but no omega-3, which is necessary and should be supplemented.) It also happens to have some phytosterol, which is one of the substances that lowers cholesterol and is the basic component in some of the cholesterol lowering agents! It is very possible that each of the fatty acids in coconut oil plays an important and different role in the metabolism of our brains and other organs. Another possibility is that the Axona folks did not have a huge number of people in their trials and I often wonder if the APOE4 problem was a fluke in their study. Also, some people in their studies had "mild cognitive impairment," not yet diagnosed with A.D. Dr. Richard Veech of the NIH, an expert in ketones who makes a ketone ester, says that he can think of no biochemical reason why Axona wouldn't work for someone with APOE4.
Thursday, June 11, 2009
For several years, Steve and I have been taking enough fish oil to equal at least 900 mg per day of the DHA part of the oil. We started doing this because there was a study in progress using this amount. I know that omega-3 is an essential fatty acid and didn't want to risk getting the placebo, so we just started using it. After reading Dr. Stoll's book, we are going to be taking at least twice that much. There are some concentrated fish oils that you can take by the teaspoon that are tested to rule out heavy metal contamination, such as mercury, that we are using instead of capsules because of how many we would need to take. We also eat salmon, fesh tuna and other fish at least twice a week.
Our diet has changed dramatically over the last three to four years to try to get away from overly processed foods to more whole foods, since these contain anti-oxidants and other imprtant phytonutrients that we wouldn't get otherwise. I have actually lost about 80 pounds since we started doing this around 2006! In my diet guidelines I encourage people to also include omega-3s in the diet.