Collecting responses for Dr. Veech
I am putting together an anonymous spreadsheet of people who have contacted me regarding a response (or lack of) to coconut oil and/or MCT oil and/or Axona for the purpose of trying to get funding for Dr. Veech's ketone ester research at the NIH. The specific information I need is the person's age, sex, diagnosis, if known, what forms(s) of the oil they have been using, their response in as much detail as possible, and any side effects, such as diarrhea; also if the cholesterol, triglyceride profile has been checked, the results would be very helpful also. To participate, you can email me back at preemiedoctor@aol.com. If you have settled on a particular "dose," that would be helpful to know as well.
The ketone ester will make it possible to get considerably higher levels of ketones than the oils. When I wrote my article "What if there was a cure for AD and no one knew?" the cure I am referring to is the ketones, not so much the coconut oil. Dr. Veech is finishing human toxicity testing this month on healthy subjects, reaching levels about 15 times what were measured with Steve on coconut oil, and there have been no adverse effects. He has also learned that there appears to be more to the ketone effect than just working as an alternative fuel; ketones also appear to be involved with growth of new neurons and nerves. He is able to make about 10 pounds of the ketone ester a week in his lab, but needs funding for a facility to make it in much larger quantity to test in AD, Parkinson's and other neurodegenerative diseases. In the meantime we can use the oils with medium chain triglycerides to produce ketones; the true cure will be the ketone ester itself.
14 Comments:
Can you consume these ketones orally or will they have to be injected?
By Richard A., At August 16, 2009 at 6:28 PM
A Dr. that might be able to help with collecting information is BG. She encourages her patients and followers to cook with coconut oil. She has a blog at:
http://www.drbganimalpharm.blogspot.com/
Being an MD you might already know this, but thought to mention that the causes of heart disease are greater than testing for simply cholesterol and triglycerides. Cholesterol plays a part, but there are many other causes too - over 300 known risk factors.
Also when it comes to cholesterol size matters. The larger the LDL or HDL the better. Coconut oil causes LDL and HDL to shift from small to large. And large cholesterol does not cause plaque problems. It is the small cholesterol that is the cause of plaque for many.
I didn't see it mentioned on your blog, I might have missed it, but if not, to help your husband you might look to normalize his hormone levels.
In my family those that have normalized their vitamin D3/ hormone levels, have seen tremendous improvements in memory. Having a circulating D3 level between 60 to 70ng/ml is what Dr Davis aims for in his patients. Those with low D3 levels are at high risk for heart disease - and as I have learned memory problems also.
Thyroid testing is important too. It appears that goiters are more common than originally thought.
DHEA normalization is another hormone that with help your husband greatly I suspect. This has helped several members of my family's memory and energy levels.
Another two blogs that might be of help are:
http://www.proteinpower.com/drmike/Dr Eades often writes about ketone formation from eating low carb diets. Great blog, worth seeing!
http://www.drmccleary.com/default.aspx
Dr McCleary is a Neurosurgeon that blogs about the ketones also. I've seen him write about MCTs of late. He does not write often, but when he does it is wonderful information worth learning.
By Anonymous, At August 17, 2009 at 4:11 AM
Richard,
For our purposes (Alzheimer's, Parkinson's, etc.) the ketone will be oral and probably in the form of a flavored liquid. It is also possible to add it to intravenous fluids and could be used, for example, to treat traumatic brain injury, or given during prolonged surgeries.
By Dr. Mary Newport, At August 25, 2009 at 6:52 PM
Thank you "Anonymous" for all of the information. I agree that it is a good idea to make sure certain hormones and vitamin levels are within the normal ranges, since deficiencies can reulst in memory issues for some people. Thank you also for the links.
By Dr. Mary Newport, At August 25, 2009 at 6:54 PM
Dr. Newport,
My father (73), physically in great shape, was diagnosed with alzheimers as of yesterday. He is very high functioning at this time. However, in the gloom and acceptance of this disease I scrambled for information and came across your site with your 6 part video on Coconut oil/MCT. Thank you so much for your personal/professional interest in the forward reasearch of ketones and for making the light at the end of the tunnel seem brighter. I will do my best from the opposite side of the U.S. to get my father on the coconut oil. He actually is supposed to beging taking aricept today, but I don't see any reason why he could not take them both. I will contribute to your research as we see (or not see) results.
Thank you again!
By Anonymous, At October 2, 2009 at 7:26 AM
I am very sorry to hear about your father and hope that this helps him. In the studies with MCT oil, people who were taking medications for Alzheimer's on average improved more than those who were not, so I encourage people to stay with these medications. Also it is important to know that if these medications are discontinued some people deteriorate rather suddenly and do not recover to their baseline simply by restarting the medications.
There is considerable information about other treatments, including medications, foods and dietary supplements in the many discussions on www.alz.org - look under "Living with Alzheimer's" and click on the Message boards.
Also, there is very much information and discussion on www.thealzheimerspouse.com. those who have spouses can post, but those who cannot can at least read through the discussions and learn a great deal.
By Dr. Mary Newport, At October 6, 2009 at 7:55 PM
Does Dr. Veech think this has any indication for use in other dementias? For instance, Frontal Temporal Dementia?
By Anonymous, At December 14, 2009 at 9:00 PM
I have had several people whose loved ones have FTD advise me that they saw a positive response after taking MCTs. Also, PCA (posterior cortical atrophy.) It is worth a try.
By Dr. Mary Newport, At January 25, 2010 at 5:31 PM
My husband died with Alzheimer's two years ago. My suspicion is that he had had it for about ten years before he actually got to the memory loss stage and then it was five painful years as he went throughthe usual horrid stagesof Alzheimer's. This was before I read about MCT and coconut oil.My mother also died some years back after living with Alzheimers for some time.
I live in a country where coconut oil used to be the most common oil for cooking, and few got Alzheimer's,but by the time my husband got Alzheimers, we had been persuaded that corn oil or canola oil was the preferred oil...mostly by Lever Bros. who produced it. When I read your article, coconut oil was mostly left on the supermarket shelves, as it turns white in airconditioning, and the other do not..
Being worried about the disease myself (my younger brother has Parkinson's) I tried the extra virgin cold pressed oil from health shops, but found the taste offensive.So I called the Coconut Oil Factory to ask the Quality Control people if they made cold pressed. They didn't, but the oil they make (which is hot pressed and has no taste) he assured me hot pressed had MCT in the same proportion. So I started adding it to my morning fruit smoothie. There is no taste.In fact, it seems to improve the smoothie which I blend up with a banana, orange juice and papaya, apple and any other fruit available, according to season.The country is Trinidad & Tobago, the brand of oil is Ariel, made by the Coconut Oil Association, and it is now moving quickly off the shelves, as I have told so many people about it.I take it as a preventative.
I am 69 years old, Last year I had a triple by-pass and I am still working as an industrial relations consultant, travelling from country to country in the Caribbean and occasionally to Miami to help people with their union/management problems.I have recently handled a mediation exercise for a Caribbean -wide company with union reps from four countries involved...something I don't think I could have done ten years ago. This may be experience and knowledge that comes with age, or it may have been helped by the MCT in the coconut oil.
Whichever it is, it has worked for me.This may be of interest to your blog.
Whatever it is, if I can help in any way to help other care givers of Alzheimer's patients, or those , like me, who don't want to experience the deterioration I lived through with my beloved husband, I would like to do so.
D.M. Wyatt
Managing Director
PMSL Ltd
14 Rust Street
St. Clair
Port of Dpain
Trinidad and Tobago
W.I.
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